Wednesday, January 14

1/14 Update

We got home yesterday around 1:30.  A fairly good visit overall.  Although we obviously never like to see Anya (or "Onion" as a guy in the elevator thought I call her) get sick but at least it happened while we were there.  We were able to try out Dr. Li's IV protocol (additional dextrose, potassium and zofran) to abort the cycle.  It will probably take a few occurrences to say for sure if it is effective but at this point I can say it may have helped.  She had actually stopped vomiting by the time she received the IV fluids but we'll never know if the cycle was truly over or if was just taking an intermission as it likes to do sometimes. Regardless her episode only lasted from about 11am to 5pm. 

Her EEG went well. We haven't gotten the official report yet but preliminary report shows zero seizure activity, random spikes and no apparent slowing in the waveforms.  Another improvement as far as we are concerned. The option to put Anya on anti-seizure meds was given but we feel confident in her stability. 

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