5/22: It was a very happy birthday!!!

Happy Birthday to Anya!

Happy 2nd Birthday baby girl! What a 2 years you have had. Mom and dad are so extremely proud of you and feel so grateful to have you as a daughter. You are a blessing! Anya has been healthy this week and more importantly is healthy today!!! Praise the Lord! Thank you for all your prayers and thoughts these last two years. Pete and I are very thankful for the amazing support we have received over these last 2 years. THANK YOU!!!!!!!

Last week we found out Anya needed to have an echocardiogram done because an EKG came back with abnormal results. Needless to say we were very concerned. Well, yesterday we found out her heart is healthy and her EKG and Echocardiogram looked normal. Good job baby girl, that's a good test to pass:) We also found out that Anya is almost 17 lbs. That is great success. She has gained 1 pound in a week. (She hasn't gained a pound in 18 months so we are very happy).

All I can say today as we are celebrate her life is, Hallelujah!!!!!!!!!!!!!!!!!!
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5/20 Update

Anya has had a great couple days recently. Happy, smiling and
giggling. We started her on Zyrtec (per Dr. Mom's request) and it
really seems to have helped with her allergy symptoms. We're tried
other antihistamines in the past with out success but this one seems
to be helping.

As some of you know, we had some nerve racking news last week where
are new pediatrician thought she noticed cataract developing in both
of Anya's eyes. The good news is we have a very observant and
thorough pediatrician. The bad new is she was right. We went to a
pediatric ophthamologist today that confirmed it.

Here again there is good and bad news. The good news is that he does
not believe it is currently affecting her vision although we will find
out for sure next Tuesday when they do a PEV exam
(http://en.wikipedia.org/wiki/Visual_evoked_potential ). The bad
news it that the cataract is located in the worst possible spot,
center posterior. Being located here disrupts the vision the most.
If they get any larger or if we find out on Tuesday her vision is
impaired, she will likely require surgery.

These pics are a few weeks old, but just wanted to share...

Sort of a rough day around here, emotionally. Anya is down to a mear 15lbs and there are a few other issues that arose today that we'll get into at a later date

Sick Again

Baby girl is sick again. This is crazy, she was sick last wednesday and Thursday, so she has had only 3 days in between this spell. I am ready to loose my mind. I can't imagine what is causing this but we need to find out soon, she is so skinny. I can't even imagine what the inside of her esophagus must look like. Please keep Anya in your prayers, we need a solution for this vomiting.

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5/8 All is well

Anya is doing great again. She snapped out of it around 12:00 noon.
Full energy and ready to eat. Hopefully she'll sleep tonight.

5/8 spoke to soon

Long night of vomiting every 5-20 minutes...  far from over this episode this morning.

5/7: Another sick day;

Six days from the last episode.  That's two weeks in a row they were only six days apart. This following about 7 weeks of seven days apart.  Prior to that they fluctuated from 7-12 days apart.  We are obviously hoping this is not a trend of her getting worse.  She entered her episode around 6:30am.  We decided to take her into the ER around 4 this afternoon per the advice of a much more proactive group of docs we are working with now.  She got the basic IV fluids + zofran.  We are home now and although she is still definitely in an "episode", her vomiting seems to have lessened in volume and frequency.  Well see how tonight goes.

5/1 Sick day..

Anya decided to change it up a bit and get sick a day early this week.  Same old story... 

 

The boys had a great time today to see Great Grandma and Grandpa and Great Aunt Sue.  Thanks for lunch!! Sorry Anya couldn't attend :(