4/26: Sick again..

Anya started vomiting again yesterday late afternoon.  Just like last Friday (4/18) and the one before (4/11), etc...  we started her again on Carnintine last night. 

 

We recently met and have been very happy with many of Anya's new docs here in Wisconsin.  It has been quite a refreshing change to see the greater level of care and communication between the specialties, as well as there much more rapid response and sense of urgency.  No revelations yet as far as a diagnosis goes but at least we now feel like she is finally being looked at seriously. 

oops

oops.  I just notice Katie just updated yesterday... Oh well.  A two-fer.

4/11: Update

Hello all.  Sorry it's been so long since any updates.  Not really much too report I suppose.  Same old story. Anya's sick right now, just like last Friday, just like the Friday before that.  She is still about 16lbs despite getting a consistent 1200 calories /day for several weeks now.  We aren't able to continue feeding her during the episodes like we thought we may be able to. So those few days of vomiting each week continue to take their toll on her weight gain.  She is getting so long.  Funny how I would normally say "tall", but when she can't stand it become "long".  What ever you want to call it, it's getting to be quite a distance from head to toe.  She is still as cute as ever. Still smiles. Still occasionally giggles. Still brings us to tears. Still humbles us. Still breaks our hearts. Still fills our lives...            We're still hoping. Still fighting. Still praying...         Still working on a full recovery.

Sorry for not updating sooner!

I know we have been terrible at updating since the move. Not sure where the last couple weeks have gone! The boys are still not in preschool so much of our day involves entertaining! Still trying to get settled. We were actually suppose to be enjoying a family vacation in mexico this week but unfortunately we're still in Wisconsin. We made it to the airport and check in only to find out Pete's passport had expired!!! Needless to say we had a disappointed family, boy did we need that vacation:)
 
Anya is doing well. She still continues her 7 day cycles. So frustrating, we haven't gotten too far with her new doctors here in Madison but we are going to see a couple more in May. I keep holding out hope that someone can help us with this vomiting issue. Poor little peanut is just so skinny! The vomiting is def. the worst part of her illness for me to handle emotionally. I just feel so bad to see her little body retching, puking and lethargic. Well, I hope we can do little bit better with the updates in the next couple weeks. Thanks so much for the continued love and support.
 
 

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