HBOT

Anya started HBOT this week and is doing really well. She is working really hard in her OT and PT sessions.

Pete took Anya this weekend to WI and the boys and myself are joining then today. We can't wait to see Anya and Pete!!

 

Here are some pictures of Anya.

 

http://picasaweb.google.com/katie.jacksonfamily/AnyaAtWisconsinHyperbarics

 

 

 

Thank You

Thank you for all the thoughts and prayers  We appreciate everyone's focus. Anya had a pretty good day and started vomiting around 6:00 this evening. We will update later.

 

God Bless.

 

 

Spoke to quick

Anya just threw up, UGH!!!! I think with this new formula we need to slow the rate and quantity way down. It has corn syrup in it (which I am totally against giving her) which takes a long time for her GI system to digest. Corn syrup for many is very hard on a gut and a huge allergen, why are we using it??? Sometimes you just need to explore every option even if it is one I don't like :) We will give her a couple weeks on this and see if her GI system can heal. Why can't there be any baby formula without added junk in it, babies don't need that stuff :) I'm a natural at heart:):) So we will hope that this vomiting won't last long.

 

9/6 A good day..

Fortunately Anya stopped vomiting pretty early yesterday afternoon and help down feeding through the rest of the day.  She just got done w/ her PT session and did the best I've ever seen.  She was able to hold her head up while laying with her belly across the therapist's leg for probably a full minute.  She was also able to apply pressure down with her hands and supporting her shoulders. It was awesome to see and a much needed (for us emotionally) step forward.

Back to it

Well Anya is throwing up again. This is really frustrating and depressing. I have no idea how long her body can continue to do this. She finally was back to regular feeds on Monday. So last weeks cycle took a long time for her to rebound from. She's had 2 days worth of full nutrition. She is so small and needs to gain weight so badly. We feel so alone in this quest to find answers. I wish a doctor could just find something wrong so we could fix it!! The days she is sick, we are by her side and the minute she gets better I am searching for answers to help her. I want so badly to just sit back and enjoy my daughter without trying to heal her. I want that "magic pill" or a miracle for her health. I am so tired of trying new things and for them to fail her. Her mind and body are lacking the nutrients she needs. Until we get her to gain weight and grow we can't work on the other things that she needs. (She has a ton of heavy metals in her body, mercury, arsenic, tin, lead.... that needs detoxing.)

 

I need to get back to my angel, we'll update later.

 

 

Happy Labor day

Hope everyone is enjoying their long weekend and getting some relaxation in!!! Anya is doing better. She is still very congested and snotty but at least no vomiting. She has not been sleeping well not sure why but I wish that would change. She's been up most days by 3:00 am, acting kinda bored. So we usually get up with her, seeing we really can't sleep if she's up. The boys are both sick with colds. Hopefully it's the cold she already had so we don't have to go through that as well. She's cutting a couple teeth as well which could be making her restless. I hate to give her Tylenol or Motrin seeing it's really not good for her GI tract. She clearly has some allergies going on, her eyes are very pink and she itches them constantly, so much that she makes them bleed. I can not figure what the allergen is. I've cleaned her bedding, toys, changed all of our cleaning products to natural cleansers, taken particular food out of her diet, tried Claritin, and still can't find what is the culprit. We have done tests for allergies and nothing shows up, so I'm pretty stumped. Just one more thing to worry about!

 

Well it's time for a cup of coffee!!! Thanks everyone for the thoughts, prayers and messages you have given us. We appreciate them all.