4/28 We got giggles!!!

Just a quick update. Anya has been doing very well. She actually giggled
today when I was tickling her armpits!!! It was awesome! She gave four
quick, cute purposeful giggles. We're so proud.

April 23 Feeling Better

Anya is doing better. She started to hold pedialyte down Sunday morning. She did get dehydrated but we were able to quickly replenish fluids once the vomiting stopped. I'm hoping today she has her energy back and gives us some of those beautiful smiles.

April 21 Baby Girl is sick again

Anya started vomiting this morning after her first feed. She has had a ton of congestion. I don't understand why mito kids have so much congestion, I would love an explanation. It is so hard to watch her sick especially when only 5 days have gone passed since the last spell. I worry so much for her. Her tiny little body working so hard to cough up this mucus. We'll see what tomorrow brings....

April 19th Anya is feeling better

Anya is doing much better. She stopped vomiting Tuesday afternoon and has been able to keep pedialyte and formula down. She's been in a lot of pain from her teeth, she has at least 2 or 3 teeth coming in. She has been grinding her teeth a lot, I know she is in a lot of discomfort. Plus she also has a cold which could have caused the vomiting. Who knows! This illness is so unpredictable. Today she has PT and OT, hopefully she'll have the energy to work on head control and some swallowing exercises.

 

Today Papa K and Uncle David come to visit. The boys can't wait, should be a great weekend.

Have a good day!!

 

 

April 17 Still sick

Well I thought Anya was on the up swing, she was looking good and seemed like her energy was back. Then around 10:00am she started vomiting again. She managed to keep most of her feeding last night, so she has had some formula and lots of pedialyte yesterday. We are not too concerned about dehydration but we will really watch for any signs and take her in if we need to. It's stressful just watching her, should we take her in, should we start pedialyte, did she have a wet diaper, do her lips and mouth look dry, does she seem lethargic?? Ugh!!! I get pretty stressed out the days she is sick, so many things to take into consideration. Please Lord help Anya to feel better soon, keep down her food and bounce back quickly from this vomiting spell.

4/15 Not doing so well today...

Anya was having such a good week (10 days since her last vomiting spell),
but around 3:00 this afternoon she went down hill pretty quick. We should
have seen it coming as she did give us her warning signs of being unusually
tired and had two good naps. It was unusual however for it to be so late in
the day. Typically she starts this around 8 or 9am. Hmmm. This girl just
will not give us a pattern to help us figure her out... All we got is every
7 to 10 days it hits the fan. She's still tough as nails though and will
bounce back.

On a good note, she made a huge leap forward a couple days ago while Katie
was working with her doing some therapy. While lying on her belly she
pushed her elbows down into the ground and was able to lift her chest up off
the floor for a moment. Katie was just screaming with joy. I love those
moments, they are our driving force...(well, one of many driving forces).

Had to share this...

 

Aksel's potty training isn't going so well...

April 11 and all is good

Just a quick update. Anya seems to be getting over her cold and the congestion is getting better. She is doing much better than last week. Still doing really well in her PT and OT therapies and we hope to start speech soon! We continue to do cranio and acupuncture which I think are helping enormously!!! I am so grateful for these two doc.'s, they have given us so much hope and have helped us to remain really positive for Anya's future.

 

 

April 6 Good Friday!

We're back from Telluride. We had to cut our vacation a little short and head back Wed. Our trip didn't go as planned but at least it made coming home feel really good!!!! Anya got really sick Monday morning which of course lead into her vomiting. She continued to get sick until Wed. afternoon. This was a long spell for her. I really think it was more of a cold that made her vomit instead of her usual cyclical vomiting spells. Aksel, Anders and myself have colds and I'm sure she picked up the bug from us. The car ride home seemed so long! I was so worried about Anya being dehydrated, she was not looking good. Then about 30 minutes into our trip back Aksel threw up in the car. Ugh! What a trip. We did have to stop at the ER in Breckenridge so we could re-hydrate her for the rest of the car ride home. I think we learned our lesson, not to vacation 7 hours away from home :):)

 

Anders and Pete did manage to ski a bit on Tuesday. Anders did great, he can do blue runs and Aksel did awesome on the magic carpet!!! The boys had a great time. 

 

We are all doing much better and happy to be home!

 

Happy Easter.