Friday, December 19

12/19 Little pip-squeak still sick

Anya is still sick. Still vomiting at least twice/hour and still very lethargic.  Katie and her are back in the hyperbaric chamber tonight.  It has been a long time since we used it and have been talking about giving it another shot as we just keep finding more and more research data supporting its potential effectiveness (plus we have it, might as well use it).  We also decided to get Anya back on CoQ10 and L-Carnitine.  It's standard procedure for mito kids but we've tried it a few times over the past couple years for a few months each trial without noticing any difference (still getting sick at regular intervals).  Again, after finding more and more data to support it, if Anya has mitochondrial dysfunction it should be helping her.  We'll give it a good 6 month trial and reassess then.

On a diffent note, Anya new switches (http://www.ablenetinc.com/Home/Products/Switches/tabid/57/Default.aspx) arrived in the mail just now.  We've played with a few diffent styles of switches w/ her therapists lately and found a couple that she can activate fairly well.  She'll be able to use these switches to turn on toys and potentially begin a form of communication.  New toys, Yea! 

Hopefully the princess will actually sleep tonight....

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