After a couple of really good weeks Anya woke up vomiting again this morning. We took her to the ER right away this time rather that waiting a few days to see if the rehydration would nip it in the butt. Unfortunately it didn't make a difference and she has continued to get sick through out the day. We did test her ammonia levels this time and they were normal. Normal is a good thing but just adds to the confusion...
On a positive note, we met with a new pediatrician (Dr. Debby Hamilton, Holistic Pediatric Consulting in Boulder, www.holisticpediatric.com) on Thursday and are very excited. She is awesome!! She is extremely knowledgeable about the entire system, which is what we need with Anya's GI, Neurological and Immune system quarks. She really seems ready, willing and VERY capable of taking the bull by the horns in helping us figure out what is going on with Anya.
Our initial one-hour consult lasted three hours as we told of Anya's long history and current symptoms. She educated us on a lot of biochemistry and Anya's previous lab work-ups and talked what she'll be looking for in her 'investigation'. Although Katie and I have been reading a lot on such subjects, this is an overwhelmingly complex faulty system we are dealing with and we weren't even getting close to understanding. It was clear from our discussion that Dr. Hamilton has a firm understanding of this system as a whole.
On another positive note, on 8/1 we started Anya's Methyl-B-12 injections...we'll see what happens..
No comments:
Post a Comment