Anya has been amazingly well the past week. It seems like a couple days after receiving CoQ-10 her eye contact has been much improved. She's been able to track objects and fixate or focus on objects for a period of time. She has also been smiling alot and even giggling. Prior to this past week Anya has only giggled perhaps twice in her life, and those were very brief moments. This has been so awesome to see. Whether or not its the CoQ-10 enzyme doing it is unknown.
We've upped her dosage of Topamax to 18mg/day but still no change in her chorea (movements). She did also vomit her entire feeding on Monday morning but nothing since.. Her sleep has been great; through the night (pretty much) and taking an hour or two nap each day.
We've started to re-introduce a bottle again w/ thickened water. She really seemed to have lost her suck during that most recent spell of being sick. She's doing ok with it but has definitely regressed. She maybe swallows 5-8cc /day (about 1/4oz).
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