We felt our trip to Seattle to see Dr. Klinghart was well worth it (but time will tell). He seemed very knowledgeable, caring, proactive and offered much hope. We finally, after so long, have a solid plan of attack and protocol to follow to address Anya's issues from multiple angles. We won't get into it too much until we know if we're on the right track.
As many of you know we recently moved to the Madison area. Aside from getting burglarized on Wednesday afternoon the neighborhood is very nice. That's right... I (Pete) was with Anya at her Neurology appointment while Katie stayed home to give the boys a nap. She decided to take a nap her self and awoke to find two guys robbing us. They fled when they saw somebody was home but Kate was pretty shaken up as you can imagine. We are just thankful nobody got hurt. I don't want to get into too much detail because I'm not sure if this website (babyanya.org) was the homepage on the computer they stole, so they potentially could be reading this. If so, please find a safer hobby and sorry if our attack dog licked your hand too sloppily.
Oh yea, the point of this website.. Anya... She has been having more frequent vomiting spells (every 4-5 days) and is down to 15.5 lbs. On Wednesday (the morning of the robbery) we had Anya's G-tube replace with a J-G tube. This will allow us to continue feeding Anya directly into her small intestine and by-pass her stomach while she is sick. With this she can continue caloric intake even while sick which may be huge for her. EEG on Monday and MRI coming soon. Fingers crossed.
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