Saturday, February 17

2/17 Quick update

Anya has been doing well and hasn't gotten sick since she was release from
children's on Fed 2nd. We've backed off a lot on her feeding volumes from
155cc's to 110cc. This is essentially the bare minimum recommended caloric
intake at her age/weight but she is clearly getting more food this way than
puking up a larger feed. I thing she lost about 1-1/2 lbs during those
rough 3 weeks. We haven't weighed her lately but I'm guessing she's gaining
again.

We did get her EEG results. Unfortunately it was the same as last time,
displaying epileptiform patterns. We were very surprised as she was so
relaxed and sleeping during the test we thought it would have been better.
For her last EEG she was squirming, wiggling and crying. hmmmm We meet
with our Nerologist on the 27th to discuss what this means.

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