2/15 Sick again

Again sounding like a broken record but she is puking again... Morning started great, happy as can be and then around 9:30 she started.

2/24 Happy V-day

We are so happy to report Anya is doing GREAT! She has been so happy these past several days.  She is smiling a lot and giggling consistantly and appropriately when being tickled.  Her breathing has been great as she is still getting over pneumonia.

Discharged!

Settled in.

Anya made it to childrens okay and is all settled in. Its a brand new hospital w/ nice big rooms and a beautiful view of the snow covered city from our 8th floor, corner room. Too bad nice views don't cure pnuemonia. She's getting a couple more xrays later tonight to reconfirm pnuemonia. She is still requiring oxygen, has labored breathing and weezing....

There goes my baby......

We're finally in route (6pm). Snow storm making the drive long.

3/4 pnuemonia again

We're back in the er and anya again has pnuemonia, a lttle worse this time. She will be transported to Childrens Hospital to be admitted shortly. On top of that she began vomiting again.

2/2: Still going..

We thought she was going to snap out of it a few times yesterday but unfortunately she did not.  She held down water from around 11pm until about 4 this morning and slept really well but then slipped back down hill.  After finding a few articles dating back to the early 1900's we had reason to suspect her Uric Acid levels to be elevated.  We began testing on Thursday (pre-episode) and sure enough, they were. We tested again yesterday during the episode and they were elevated even higher.  We plan to test again after she recuperates.  Uric acid levels are essentially dependent on how our body breaks down proteins, so hopeful this will be a valuable piece to her very confusing puzzle.

2/1: Spoke to soon again

Baby-doll seemed great this morning. Couple more smiles and just normal energy level.  But then around 8:30am she fell into another episode. Again, 7 days from the start of her last episode..

1/31 Doing Great...

Anya has been doing so well these past couple days. She is smiling a ton. Smiling when she's tickled, smiling for books, she smiled after a taste of tea, smiling while playing with toys. It has been awesome... (see video above or on Video/Pictures page). She is getting the hang of reaching for objects and seems to be driven to successfully do so... We're so happy and proud of her...

Home now

CT and Xrays where fine. We are home now. Anya is still lethargic but hasn't vomited in 2 hours...

1/25 back in the ER...

Anya's currently in the er getting dehydrated, chest x-rays and head CT scan. Nothing new, so not to worry. Just want to be thorough. I'll update when I hear anything.

1/25 Off to the Hospital

Anya is going to the hospital for some IV's. Not sure if she will be admitted.

1/24: Sick again

I hate to sound like a skipping record but here we go again...  She had a great couple days, smiling alot and seemed well but she woke this morning completely wiped-out and vomiting.  As we continue to research and try to figure this girl out....

Go Pack, Go!!!!

1/15: Finally, she's done!!

Knock on wood but she finally appears to be through this episode (11:45pm, 2 1/2 days).  She hasn't gotten sick in two hours and we were able to give her a bath, get her in some fresh PJ's and start putting food in her belly.  We're trying something a bit different this time to reintroduce food. She's just getting MCT oil, amino acids, brown rice syrup and water (fat, protein and carbs, all in their easiest forms to digest).   Her 'recovery' (if that's what this truly is) was a bit different this time.  Normally she snaps out of it and is wide awake for8 hours. This time she was wide awake for an hour or two and then showed signs that she was ready to be put down to bed (the 'sign' actually reads "leave me the heck alone" but close enough.  We'll see what happens....  finally time to sleep!!!  Thanks again all for your thoughts and prayers.

1/15: Still going...

It let up from about 3:30 until 6:30 this morning and we thought she was through it but then she quickly fell back into her lethargic state and the vomiting continues...   What could this be..................... 

Here we go again

Anya started vomiting this morning. Let's pray this goes by quickly!

1/06: some weight gain..

I'm 17.3 lbs... yea!!

1/05 Weee!!!!!!!