Hi All. I just wanted to let everyone know that Anya is doing AWESOME!! She has been very very happy, smiling all the time. She doesn't seem to be showing any signs of pain from the surgery and the incision is healing nicely. Although we are still very cautious with her, she's been able to spend some time in her stander and enjoys it as much as ever; no discomfort. She is tolerating her full feeds effortlessly and has not had any retching since that first night.
We often get asked if this means she'll be able to eat by mouth now, but unfortunately it's not that simple. Her dysphagia (inability or difficulty coordinating a swallow reflex) is more likely a neurological dysfunction and not totally a structural or physiological issue. Although at least now she has a fighting chance... Prior to repairing the hernia there was probably too much discomfort or blockage of the esophagus to swallow, even if she knew how to. Time will tell. Our goal is for her be eating cake at her 4th birthday party.
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