12/22 Doing okay...

Baby-Doll is doing okay this evening.  Not great, not terrible, just okay..  We almost took her back in to the ER this morning, not necessarily for more IV fluids but just as a way to possibly get her Admitted.  We decided instead to take her in to her PCP (Primary Care Physician) to discuss what more could be done even if she were admitted.  Unfortunately there is really nothing more they can do.  She is now down to 19lbs 4oz and looks skinnier than ever.  She is still vomiting periodically this evening, although not as much nor as frequent. 

We did decide today to go ahead with the muscle biopsy but to just have it done here in Madison rather than going to see Dr. Schoffner in Atlanta.  It is a bit of a gamble though because in Atlanta they can perform a fresh muscle biopsy and be able rule out (or in) a broader spectrum of mito conditions then a frozen biopsy performed here. Logistically (and for insurance reasons) we are just finding the Atlanta option to be too prohibitive.  Madison is a great facility and we have confidence in them here.  In the rare but quite possible event they don't fine anything here, we can always reconsider Atlanta in the future...  There have also apparently been some recent improvements made to a mito DNA blood test that we had done in the past, that justified retesting.  So that will be the first step.  We are going to try to see the Geneticist sometime in January to schedule the biopsy.