Poems

I just wanted to share a couple poems I came across today.  We, as parents, can only guess what Anya is feeling.  I couldn't help but assume it is in these words...

 

 

source:

http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/lauren_poems.html

please check out her website as well...  I think Lauren is about 18yrs old and is suffering from Porphyria/

 

With courage and strength we fight the good fight, all day, everyday, through day into night. Our battles are lonely, confusing and trying, all the time we're determined not to think about dying. But we fight the good fight, and we know we can win, for our will to survive really does lie within. We hold our heads high and we live for today, we always are trying to keep our illnesses at bay. Through good times and bad, we keep our futures in sight, for we will not give up, we fight the good fight. Lauren

Dark, it's dark. The light runs away from me. Not alone, but lonely. Scared. Anticipating. Angry. However, a bleak light shines through,  making it past the cold wall that surrounds me. Sad, but hopeful,  for the light that shines through  renews my faith in something. Something. As long as there is something, I have hope. Lauren

  

Dominic suffers from Cyclic Vomiting Syndrome (CVS), just like Anya. Oh wait, I forgot, Anya doesn't have CVS according to one of her doctors because CVS is not a real disease. It is just something teenage girls make up to avoid going to school... (what a Jack-ass)...

 

From: http://www.cvsaonline.org/CVSAKidsZone_files/CVSAKidsZone.htm

 

I Wait

By Dominic Gallardi

 

I know it's always there,

Waiting to strike;

I know you all care,

But, this is my fight.

 

I count down the days,

Wishing it not to come;

I feel the first faze,

But, know I know I can't run.

 

I hope for a cure,

To this ugly disorder;

Until then I pray,

Each occurrence will get shorter.

 

Thank you for listening,

To my feelings and fears,

Thank you for helping,

Dry the children's tears.