A good night but a sad day...

Anya is doing well. She slept good last night and actually just took a nice 20 minute cap nap. It's is a painfully sad day today though as we are reminded of the realities of what we may face. Anya's condition has opened our eyes to an entire community of parents just like us; taken into a world we never thought possible. Today, one of those families morns, as does the rest of this community, for the lossof their baby girl, Morgan. Morgan was 2 1/2, has an eerily similar medical history to Anya and was diagnosed with Mito just this past May. She her story here.