Another Sleepless night

Good Morning! Anya had another sleepless night. She's been very agitated all night. Her movements get really bad when she's tired but because of her movements she can't calm herself and sleep. This movement disorder (chorea) is so unfair. She looks so frustrated with her arms and legs flailing around. I can't imagine what it must be like to be trapped in a body that doesn't settle. Yesterday, she took a 3 hour nap, which is great but I had a feeling we would be up all night. Ugh! We'll see what today brings us. Hopefully she can calm her movements and get some rest. She is on topamax for her movements but I don't think it is working, we may have to up her dosage. Who knows, this is all one puzzle..........