more giggles.

12/17 All is well. Just saying Hi!

11/9 Old Picture

Just came across this picture on my phone. wanted to share. Anya is doing really well. Has slept great the past few nights.

10/31: We miss you, baby!

We miss you so much baby, but it looks like you're having fun at Nana's. See you tomorrow...

10/30: Anya's Demo power-chair.

We got Anya's demo power-chair the other day. She'll get to try this for a few weeks. If it looks like she'll understand it, insurance MIGHT get her one... I'll post a little video later.. (I know she needs a foot rest!!)

moew pics

 
 
 

10/25 Babydoll had a nice fall day.

 
 
 
 

10/21 She's such a happy girl...

My little pumpkin!

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No news... I guess good news

Haven't updated much in the last couple weeks, there's not much news to report. Anya is still really loving school and gets excited as soon as she enters the classroom and sees her teachers. She seems to be bored on days she doesn't get to go, we need to keep her more active, just so hard with the boys. This week in school she went to the park and was able to "play" in the sand, she liked the texture and moving her feet in the sand. So cute to see her sandy little piggies when I picked her up from school! She's been doing a lot of hand biting which is tiring. She hasn't been sleeping well either, lots of all nighters. Hopefully that will change soon, we all could use some good nights sleep.

We are pretty much moved in and feeling really happy with our choice to have moved to Appleton. We love it, just feels right. The parks are great, even equipped with special needs swings so baby girl can join her brothers in swinging! The neighborhood is great, and really like the neighbors. The teachers at her new school are awesome. Everything is going great!!! With the move we will continue to have her specialist in Madison, and just go back on an as needed basis. We haven't quit in our search for a diagnosis but we are ready to get back to a "normal" life, whatever that may mean for us.

I'll try to update more often as the school year progresses. We are very excited to see what Anya learns in school :)

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Kids on their first day of school

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First Day of school

Anya had her first day of school today, she did fantastic!!! The teachers were wonderful with her and we felt very comfortable with their care :) She is going to love it. She participated in music class by shaking the bells! Thata girl! I post pics soon, we just got internet connection in the new house, now I need to find the cable to down load pics.

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NICU Opening Day!

 

8/10/09 In Seattle

Anya just flew to Seattle and boy are her arms tired...       She flew very well. She's a good little traveller.  We'll see how sleeping goes tonight (actually, she's passed-out on the bed right now).   We are here see Dr. Klinghart for our third visit.  It went really well but we'll see how his protocol works this time.  The past couple times, Anya had been too sick vomiting to hold down anything we would give her.  And not knowing what was causing the vomiting spells, we always hated to give her anything.  But now she'll take it.  We are hopeful.

 

All in all, Anya's been doing fairly well.  She still has her retching spells everyday but they seem to be less frequent.  They actually really only happen now when she is tired. Around 7am, when she had been up for a while just hanging out in her bed. Then again around noon/nap time. And once more just before bed.  The glycopyrolate seems to help but too much definitely worsens things by making her saliva too thick.

 

On Thursday Aspirus is having their grand-opening/open-house of the new "Anya Marie Jackson Newborn Intensive Care Unit". It is going to be awesome.  I'll write more on that later.  details here...http://www.aspirus.org/healthInformation/index.cfm?catID=4&subCatID=39&pageID=148&det=690

7/20

Mornin all!   The princes is having a Bronchoscopy done this a.m.  The procedure is scheduled for 7:30 so we need to be there by 6:15 for all the pre-op stuff.  She needs to be put under again which we hate doing.  We just woke her a few minutes ago. She looked up at the two of us hovering over her and just a gave a huge smile and stretch.  She's so damn cute...     I'll give an update when she out of the o.r.

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Anya had a good 4th of July!

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Weight Gain.... Finally!

Anya weighs 25 lbs. 11 oz. We actually need to back off in total calorie intake, she's getting pudgy. I love it!!!!!!

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6/2 ...

Good Morning

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